Resources for Living with a Breast Cancer Diagnosis
In addition to these website resources for people living with breast cancer, see Tips for Living with a Breast Cancer Diagnosis for specific steps you can take right now to reduce your risk and positively affect your health outcome.
While our list of website resources is by no means comprehensive, we hope you will find it useful and we welcome your suggestions for additional resources to include.
U.S. Breast Cancer Resources
National Cancer Institute (NCI) is the federal government’s principal agency for cancer research and training. This website has information for patients regarding prevention, treatment, screening and coping with breast cancer as well as links to the latest research.
American Cancer Society A nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem. This website provides detailed information to help people (and their loved ones) who have been diagnosed with breast cancer, going through treatment, or trying to stay well after treatment.
Breastcancer.org’s mission is to help people make sense of the complex medical and personal information about breast health and breast cancer, so they can make the best decisions for their lives. Their website includes comprehensive information for people recently diagnosed and/or living with breast cancer including help unpacking your symptoms and diagnosis as well as treatment options and side effects.
Breast Cancer Action is focused on achieving health justice for all women living with and at risk of breast cancer. BCA offers a Toolkit that includes two useful resource guides that are available online for people navigating breast cancer: What You Need to Know About Breast Cancer and Tools and Tips for a New Breast Cancer Diagnosis.
Young Survival Coalition (YSC) serves young adults affected by breast cancer, locally, nationally and internationally. Their website has resources for people living with breast cancer focusing on treatment, quality of life, fertility and family planning, managing side effects, sex and intimacy, long term survivorship, etc.
Local SF/Bay Area Breast Cancer Resources
Bay Area Cancer Connections (BACC) supports anyone affected by breast or ovarian cancer with personalized services that inform and empower.
Bay Area Young Survivors (BAYS) is a support and action group for young people in the SF Bay Area who are living with breast cancer.
Breast Cancer Emergency Fund This San Francisco Bay Area organization is dedicated to providing emergency financial assistance to low-income women and men battling breast cancer.
Susan G Komen Northern and Central California Local Komen Affiliates support the national Komen organization in its mission to support breast cancer research and work to improve access to quality and timely cancer care for the underserved in their areas. Find an affiliate in your local area here: https://ww5.komen.org/Affiliates.aspx.
International Breast Cancer Resources
European Cancer Leagues is a pan-European umbrella organization of national and regional cancer societies who collaborate on cancer prevention, tobacco control, access to medicines and patient support.
European Cancer Patient Coalition This is the largest European cancer patients’ association covering the European Union and beyond. Member organizations can be filtered for breast cancer to find breast cancer organizations in 15 EU countries and Australia, Canada and Taiwan.
Breast Cancer UK is primarily focused on the prevention of breast cancer, but has a page of resources for clinical or pastoral support or advice or information on treatment.
Rise Up Against Cancer Belgium (KomOpTegenKanker Belgium) This dutch language organization supports all cancer patients (in dutch).
Breast Cancer Action Germany This German organization is independent of any commercial links and takes the perspective of the questioning or critically inclined patient or consumer towards a range of topics including environment, insurance, treatment, and more.
Women’s Health Network Berlin Breast Cancer Workgroup (Netzwerk Frauen Gesundheit Berlin AG Brustkrebs) This German organization takes an interdisciplinary approach to women’s treatment and a range of topics including prevention, early detection, diagnosis and treatment, bioethics, psychosocial counseling and more. Although based in Berlin, much of its work is relevant across Germany.
Other Countries Australian, Canadian and Taiwanese breast cancer organizations are listed on the member page of the European Cancer Patient Coalition (see above).